While April is Autism Acceptance Month, it's never been about just one month for Saint Joseph's University men's basketball head coach Steve Donahue; it's about how he can use his platform to make a daily impact on those who are viewed as different because of their neurodiversity.
"The more we can make people aware of the different situations surrounding those with autism, the better understanding we will have of each other," Donahue said. "Especially with kids and adults on the spectrum."
Autism awareness is something close to Donahue's heart.
Growing up in Springfield Township, Pennsylvania, Donahue was introduced to neurodiversity at a very young age. His older brother, Jackie, has a severe form of autism.
"As a family, we embraced it," Donahue said. "It helped me understand that everyone is different, and taught me how to be more accepting and empathetic toward others."
According to the American Psychological Association, autism, or autism spectrum disorder (ASD), refers to persistent deficits in social communication and social interaction, including difficulties with social-emotional reciprocity, nonverbal communication behaviors, and social relationships, along with restricted and repetitive patterns of interests, behaviors, and/or activities.
There are many forms of autism, usually categorized into three levels based on severity and the level of support an individual may need. Autism, Asperger's disorder and childhood disintegrative disorder are now all diagnosed as ASD.
However, the research, statistics, and support weren't always there, especially when Jackie was younger. Donahue noticed the difference after his oldest son, Matthew, was diagnosed with autism early in elementary school.
"From the time I grew up to the time Matt was a child, I saw great growth in autism awareness, research and support," Donahue said. "Everyone realizes that people on the spectrum are smart and valuable, but need secondary education and additional support to reach their full potential."
"In the early 2000s, we saw a real jump in autism and its numbers," said Theresa McFalls, LSW, Ed.D., the executive director of St. Joe's Kinney Center for Autism Education and Support. "Since then, a ton of research has come out. In the early days it was more about changing the person with autism to adapt to society, and we've seen a shift in changing the way society can adapt and support the person with autism, and the shift is so critical and neuroaffirming."
McFalls, who will celebrate her 15th anniversary at the Kinney Center this summer, oversees all of the programming and operations for the center. Before assuming her current role, McFalls led the Kinney Center's ASPIRE Program, which provides support for St. Joe's students with autism as they navigate through college.
ASPIRE, or the Autism Support Promoting Inclusive and Responsive Education Program, was a crucial aspect of Matt's decision to come to Hawk Hill. McFalls, who served as Matt's counselor during his time at the Kinney Center, was a part of helping the Donahues choose St. Joe's.
Matt, who was diagnosed at Strong Memorial Hospital in Rochester, New York, when his dad was coaching at Cornell, has high-functioning autism and is part of ASD's Level 1. The lowest level of autism means that the individual "requires support" and can suffer from deficits in social situations.
While Matt relied on support from counselors and professors early on, he quickly became independent. McFalls recalled sitting down with Matt and helping him register for classes during his first few semesters on campus; however, it didn't take long for Matt to be able to complete what can be a stressful and chaotic task on his own.
A 2021 graduate of St. Joe's, Matt has excelled in life thanks to his support system, adaptability and independence. Always known for his love and knowledge of politics, Matt received a bachelor's degree in political science and government.
"Matt and I did a lot of things together in the beginning," McFalls said. "We built a really good relationship and had a lot of trust in each other. He became more and more comfortable with doing things on his own because of that. Matt always wanted to be independent, and I knew that he could be. He really proved that during our time working together."
"He's done an incredible job getting through this and understanding how to deal with it," Donahue said. "That's him. As he's gotten into adulthood, he's really dealt with it greatly. He's incredibly smart, one of the smartest people I've known. His knowledge and understanding of our world are amazing."